I found this video from Google. Okay I am definitely not a big fan of the show's title Channel 4's Embarrassing Bodies.
Ichthyosis is hard enough to deal with and sure we feel 'embarrassed' by it. However, the show's title is a shame.
Okay after watching the episode, I'm glad it was very straightforward medical show and not a fussy freak-of-the-week thing. I actually like the treatment they presented.

Monday, November 5, 2012
Saturday, November 3, 2012
Thoughts on Ichthyosis: A Mother Worries
It has been a year today since I gave birth. I knew the very same day that my newborn had hints of Ichthyosis on his skin. Hubby told me it was too soon to tell. But I knew. When I held my baby he had the softest skin, yet he had too many lines on the soles of his tiny feet and his little fingers had deep lines already.
I wasn't sad, I braced myself for this, but I was worried. I can live with the thought of my son having hyperlinear palms, hyperlinear feet and deep lines on his neck. I am at least hoping he won't have the flaking and the severe shedding that I have. I was hoping that he would take after his father- dark skinned and hairy with no Ichthyosis in sight.
Due to Ichthyosis, I have no hairs on my legs, the hairs are curled up stuck inside the pores which makes my skin look like "prickly chicken skin with dandruff" on most days. I do not wish for my baby, the ridicule I endured because of this skin condition. I do not wish for him, the itchiness, the soreness of the skin on cold months or spending days fully covered, hiding his hands away from the world. I guess any mom with a rare genetic skin condition would wish the best for her child. Well, it has been a year, so far no flakes on my little baby. I hope it stays that way.

I wasn't sad, I braced myself for this, but I was worried. I can live with the thought of my son having hyperlinear palms, hyperlinear feet and deep lines on his neck. I am at least hoping he won't have the flaking and the severe shedding that I have. I was hoping that he would take after his father- dark skinned and hairy with no Ichthyosis in sight.
Due to Ichthyosis, I have no hairs on my legs, the hairs are curled up stuck inside the pores which makes my skin look like "prickly chicken skin with dandruff" on most days. I do not wish for my baby, the ridicule I endured because of this skin condition. I do not wish for him, the itchiness, the soreness of the skin on cold months or spending days fully covered, hiding his hands away from the world. I guess any mom with a rare genetic skin condition would wish the best for her child. Well, it has been a year, so far no flakes on my little baby. I hope it stays that way.
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