Thursday, August 25, 2011

Icthyosis Vulgaris on Nipples

I underwent biopsy surgery for a bump on my left breast once. The doctor-interns/residents were arguing that I might have something more because my nipples and areola were flaking and had a thick crust of skin on it that would molt and fall off. It seemed very unusual for a teenager to have back then and was thought to be a troubling sign for other breast conditions. The surgeon told them to shut up, he told them I had Icthyosis Vulgaris. They asked, how did he know? Surgeon says the patient told me so. And he went back to doing the biopsy.

Okay, so I guess its really important to note your medical history whenever you are in treatment for something. Young doctors can't help nitpicking everything they notice on your body.

Monday, August 22, 2011

The Psoriasis Hug Me Campaign of 2009

Old news, but good news nonetheless! Filipino Celebrity Robin Padilla Supported Psoriasis Philippines during the Hug Me Campaign 2009.

This was an event and an active campaign by PsorPhil to raise awarenessin the Philippines that Psoriasis is not a contagious disease. Other celebs giving out hugs include Robi Domingo, Jake Cuenca, and Nancy Castiglione.

Tuesday, August 16, 2011

The Fuss over Kim Kardashian and Psoriasis

When a celeb gives a face to an affliction, this can be a boon or bane, but just the same it tells us that such genetic disorders don't spare anyone celebs included.

So the big celebrity news that has households swinging the term Psoriasis around is surprisingly attributed to Kim Kardashian. Her legs are now hounded by the paparrazi when news of her Psoriasis flare-ups reach the tabloids.

So in a span of a week, there has been so much coverage on Kim Kardashian having Psoriasis. What a way to debut such news, quite timely since August 2011 is National Psoriasis Awareness Month. I guess the whole world is now pretty much informed and googling about what Psoriasis is and what it possibly looks like on a lovely Kim Kardashian.

On twitter, Kim Kardashian shows the world a cute little heart shape spot of Psoriasis. Just what the world should know about that Psoriasis sufferers need understanding, not discrimination. Like everyone else, Psoriasis and Ichthyosis sufferers have a lot of love to give.

Monday, August 15, 2011

Rock It for Psoriasis: The Psoriasis Philippines Foundation Benefit Concert

It is estimated that 1.9 million Filipinos are believed to be suffering from the genetic condition of Psoriasis. Some choose to hide their skin affliction by all means possible and by all means, that is close to living in seclusion, hiding from the rest of the world. Psoriasis sufferers much like Ichthyosis sufferers try to put up a brave front to fend off the stigma that goes with such skin conditions.

PsorRocks is a benefit concert organized by PsorPhil (The Psoriasis Philippines Foundation). Their aim is to generate awareness on the Psoriasis skin condition:

1. Psoriasis is not contagious.
2. The money earned from the concert will go to information-educational campaigns and programs for Filipinos suffering from Psoriasis.
3. PsorPhil links the economically-challenged Psoriasis patients to institutions who can fund their medicines and treatments.

The PsorRocks concert features the following bands: 6 Cyclemind, Grace Note, Calla Lily, Kenyo, Cueshe, Slapshock, Even, Tricia Garcia, General Luna, Up Dharma Down.

The event will be held on:
  • Date: 20 August 2011
  • Time: 7:00 PM
  • Location: Baypark Area, Service Road of Roxas Boulevard (near Raha Sulayman Plaza)
  • Tickets: GP Php100.00 and VIP Php1,000.00, Available in SM Tickets Branches nationwide.
For more details, please call PsorPhil office at 8893596, 3794290, 09228297767.

Visit their website for more info:

Wednesday, August 10, 2011

The Butterfly Children of the Philippines: Epidermolysis Bullosa

The blisters these Filipino children have to live with are scathing and painful. Every once in a while local TV stations would feature people suffering from skin conditions like Epidermolysis Bullosa. Wish Ko Lang (My Wish) is a charity TV show that aims to grant wishes of those suffering with afflictions or in dire poverty. I found the link at the Philippine Ichthyosis Support Group on Facebook.

Friday, August 5, 2011

Ichthyosis Support Group in the Philippines

If you are suffering from skin conditions similar to Epidermolysis Bullosa, Ichthyosis vulgaris, Lamellar Ichthyosis or an inherited skin condition that shows extreme scaling and blistering, there is a Ichthyosis Support Group in the Philippines on Facebook.

We all know by now that there is no cure because the condition is genetic. But there are treatments and ways we can help each other deal with the condition through support and sharing of information. Those afflicted can share their stories, tips, medication info, treatments pursued, doctors and specialists they've consulted. So please like or add the group in your facebook page or inform someone you know who has this condition that such a support group exists.