Friday, August 5, 2011

Ichthyosis Support Group in the Philippines

If you are suffering from skin conditions similar to Epidermolysis Bullosa, Ichthyosis vulgaris, Lamellar Ichthyosis or an inherited skin condition that shows extreme scaling and blistering, there is a Ichthyosis Support Group in the Philippines on Facebook.

We all know by now that there is no cure because the condition is genetic. But there are treatments and ways we can help each other deal with the condition through support and sharing of information. Those afflicted can share their stories, tips, medication info, treatments pursued, doctors and specialists they've consulted. So please like or add the group in your facebook page or inform someone you know who has this condition that such a support group exists.

1 comment:

  1. You may want to try Mezasol herbal oil, a locally produced oil from Negros island in the Philippines. Not sure if it works with Ichthyosis, but my family has been using it for various skin problems since I was a kid for various skin problems.